Tuesday, September 25, 2012

Making set up a little easier

I wish I could say that we have adjusted to the daily routine of hooking Hubby up to the dialysis machine, but we haven't.  Every night there is an emotional weight that seems to come with the hook up.  However, we did find out something that has made some days a little easier.

Nights are rushed.  Between children, dinner, activities, and hooking Hubby up, I feel busy most nights.  Some nights are harder than others to fit it all in.  An email from Hubby's dialysis nurse, offered a thought.

We were told that we can prep the machine at any time and simply hook Hubby up when he is ready.  Some days I don't get a chance to do all the prep work earlier, but today I was able to make the time to clean up the machine, empty and clean the bucket, and get the bags attached and ready.  This will make my night easier.  After picking up our teenager for school, it is off for a doctor's appointment, then home to make dinner, then instead of rushing in to clean up everything and prep the machine, I will simply have to go in with Hubby when he is ready, clean his exit site and hook him up.

What happens if the power goes out or the machine becomes unplugged?  It's ok, just click the green go button until the machine is ready to go again.

Ask your dialysis nurse and then give it a try!  It may help make hook up time a little easier.  Just make sure you save your mask so you don't have to use a new one for the hook up (you can see in the picture, I leave mine on the machine).

1 comment:

  1. Do you know someone who has/had kidney disease? If so how long did they live? How many kidney transplants did they receive, 1? 2? 3?
    Or are you a doctor who knows statistics. I would really like to know how long people usually live if they had kidney failure as a young child and had a transplant and now need another kidney transplant. How long can that person really expect to live?